Patient Reported Outcomes from Patient's Point of View
February 3, 2021 from 3:30pm EDT to 4:00pm EDT
Patient Reported Outcomes (PROs) are an increasingly recognized valid outcome by researchers and clinicians comparing different treatment modalities. In addition, their routine use in certain clinical scenarios, when coupled with a well-formulated clinical support model, can improve patient survival and reduce hospitalization rates.
While researchers, and now clinicians, have a strong appreciation for the benefit of utilizing PROs in research and clinical practice, it is less clear how well the routine use of PROs is accepted by patients. This short session will discuss the different formats of PROs, and the potential burden they put on patients, especially when administered by multiple groups in an uncoordinated fashion. A primary purpose will be a call to the national radiation oncology community to advocate for PROs that are patient-friendly, specific to radiation oncology, and nationally coordinated, while also integrated with partner groups in your local organization such as medical oncology.
Speakers / Panelists
Louise Bird Patient Advisor
Louise Bird
Louise Bird Patient Advisor
I am a twice over breast cancer survivor of 17 years (my last treatment date was July 4, 2004). When I was first diagnosed in December of 2002, I was 37 years old, working wife and mother of four children and Nana to one grandson. My children ranged in age from 19 to 13 years.
In 2011 I answered a ad for a Patient Representative to sit on CPQR, and as they say the rest is history and here we are today. Through my work on the Canadian Partnership for Quality Radiation Therapy I gained my “Patient Voice’ and continue to use it each and every day. For me working on behalf of other Patients in Canada is a way of paying it forward and assisting to improve Patient Care for those undertaking the Journey!
I currently sit on a number of initiatives both Provincially and Nationally.
Robert Olson, BSc MD FRCPC MSc Radiation Oncologist
Robert Olson, BSc MD FRCPC MSc
Robert Olson, BSc MD FRCPC MSc Radiation Oncologist
Rob is a Radiation Oncologist who practices in Prince George, BC. He completed his BSc and MD at the University of Calgary, his residency at UBC, and his MSc in Epidemiology at Harvard. He is the provincial Division Head of Radiation Oncology at UBC, and the Research Lead for the UBC Northern Medical Program. His clinical practice is focused on breast cancer, and head and neck cancer. His research is predominantly focused on running clinical trials of precision radiotherapy in the metastatic setting, and is the PI on SABR-5, SUPR-3D, and COMET-3. In addition he is the founder and lead of BC’s Prospective Outcomes and Support Initiative (POSI) which collects and utilizes patient reported outcomes (PROs) for patients receiving radiotherapy. He has also integrated PROs into his numerous clinical trials, and works with national groups, such as CPQR to standardize PRO collection within the radiotherapy community. When not at work, he is either hanging out with his family of 6, or skiing, running, swimming, or cycling.